薛珍 游荣枫 邓菁

[摘要] 目的 探讨以家庭为中心的护理模式对肾病综合征患儿治疗依从性、生活质量及复发的影响。 方法 选择2017年7月至2019年7月我院收治的肾病综合征患儿82例为研究对象，按照随机数字表法分为两组，每组各41例。对照组采取常规护理干预，研究组采用以家庭为中心的护理模式，观察6个月。比较两组患儿治疗依从性、并发癥发生率、生活质量评分及复发率。 结果 研究组治疗总依从率为95.12%，高于对照组的80.49%，差异有统计学意义（P<0.05）;研究组并发症总发生率、复发率为7.32%、9.76%，均低于对照组的24.39%、26.83%，差异有统计学意义（P<0.05）;护理前两组少儿主观生活质量问卷（ISLQ）评分比较，差异无统计学意义（P>0.05）;护理后研究组ISLQ评分为（172.75±14.90）分，高于对照组的（161.58±15.64）分，且两组护理后均高于护理前，差异有统计学意义（P<0.05）。 结论 以家庭为中心的护理模式能够提升肾病综合征患儿治疗依从性，降低并发症发生率及复发率，改善患儿生活质量。

[关键词] 肾病综合征;以家庭为中心的护理模式;治疗依从性;生活质量;复发

[中图分类号] R47          [文献标识码] B          [文章编号] 1673-9701（2021）24-0168-04

Effect of the family-centered nursing mode on treatment compliance， quality of life and recurrence in children with nephrotic syndrome

XUE Zhen   YOU Rongfeng   DENG Jing

Ganzhou Maternal and Child Health Hospital in Jiangxi Province， Ganzhou   341000， China

[Abstract] Objective To explore the effect of family-centered nursing mode on treatment compliance， quality of life， and recurrence in children with nephrotic syndrome. Methods Eighty-two children with nephrotic syndrome admitted to our hospital from July 2017 to July 2019 were selected as study subjects. According to the random number table method， they were divided into two groups， with 41 cases in each group. The control group received the routine nursing intervention， while the study group adopted the family-centered nursing mode. They were observed for six months. Treatment compliance， complication rate， quality of life， and recurrence rate were compared between the two groups. Results The total treatment compliance rate in the study group was 95.12%， which was higher than that of 80.49% in the control group， and the difference was statistically significant（P<0.05）. The total complication rate and recurrence rate in the study group were 7.32% and 9.76%， which were lower than those of 24.39% and 26.83% in the control group， and the differences were statistically significant（P<0.05）. There was no statistical difference in the inventory of subjective life quality （ISLQ） scores before nursing between the two groups （P>0.05）. The ISLQ score in the study group after nursing was（172.75±14.90）points， which was higher than that of （161.58±15.64）points in the control group， and the differences were statistically significant（P<0.05）. After nursing， the ISLQ scores of both groups were higher than those before nursing， with statistically significant difference（P<0.05）. Conclusion The family-centered nursing mode can improve the treatment compliance of children with nephrotic syndrome， reduce the incidence of complications and recurrence， and improve the quality of life of children.