赵宁　刘妍妍

[摘要]目的 探讨系统化健康指导对癫痫患儿家长疾病认知及治疗依从性的影响。方法 选择2012年6月～2013年7月我院神经内科收治的60例癫痫患儿，按入院先后登记秩序随机分为2组，单号为实验组，双号为对照组，每组各30例。实验组采用全程性、分阶段、个性化的系统健康指导形式，对照组采用常规健康指导方式，观察两组家长癫痫知识知晓率、治疗依从性、服药依从性及出院6个月内癫痫再发作率的差异。结果 两组家长癫痫知识知晓率比较，差异有统计学意义（P<0.01）；两组治疗依从性比较，差异有统计学意义（P<0.05）；两组服药依从性比较，差异有统计学意义（P<0.01）；实验组患儿出院6个月内癫痫再发作率低于对照组，差异有统计学意义（P<0.05）。结论 系统化健康指导能有效提高癫痫患儿家长的治疗依从性，降低癫痫再发作率，促进疾病康复。

[关键词]健康指导；癫痫；依从性

[中图分类号] R742.1 [文献标识码] B [文章编号] 2095-0616（2014）10-128-04

[Abstract] Objective To investigate the influence of systematic health guidance on the treatment compliance and the disease awareness of the parents of children with epilepsy. Methods Sixty children with epilepsy admitted to the neurology department of our hospital from June 2012 to July 2013 were selected and randomly divided into 2 groups according to the registration order of hospital admission. The odd number was assigned to the experimental group and the even number was assigned to the control group， with 30 patients in each group. The experimental group used whole journey， grading and personalized systematic health guidance mode and the control group used conventional health guidance mode. The differences in the parents' knowledge awareness rate of epilepsy， treatment compliance， drug therapy compliance and epilepsy recurrent rate within 6 months of discharge between the two groups were observed. Results The parents of the two groups of children were different in the knowledge awareness rate of epilepsy， with statistically significant difference（P<0.01）， were different in the treatment compliance， with statistically significant difference（P<0.05）， and were different in the medication compliance， with statistically significant difference （P<0.01）. The experimental group was lower than the control group in the epilepsy recurrence rate within 6 months of discharge， with statistically significant difference（P<0.05）. Conclusion Systematic health guidance can effectively promote the treatment compliance of the parents of children with epilepsy， reduce the recurrence rate of epilepsy and promote disease recovery.

[Key words] Health guidance；Epilepsy；Compliance

癫痫是由各种不同病因引起的一种慢性反复发作性综合征，疗程较长，如不依从医嘱坚持治疗，突然停、换或漏服药物将会导致抗癫痫药物的血药浓度下降，引起癫痫发作，甚至癫痫持续状态的发生，也可能发展成顽固性癫痫或减少其最终控制的可能性[1]。由于小儿癫痫病程长，护理主要由家庭承担，因此家庭护理对降低复发率、提高治愈率、改善患儿生活质量至关重要[2]。为提高患儿家长对疾病规范治疗重要性的认识程度，我院神经内科自2013年1月开始对收治癫痫患者实施系统化健康指导，通过入院、住院、出院三个不同阶段，采取科学、有效、有针对性健康指导，并建立了“癫痫微信网络平台”提供健康咨询，将健康指导延伸至家庭，取得了满意效果，现报道如下。

1 资料与方法

1.1 一般资料

选择2012年6月～2013年7月病房收治的60例癫痫患儿为研究对象，其中男36例，女24例，年龄4个月～11岁；……